May, 2021

Barts Life Sciences’ precision medicine programme is recruiting for an information governance lead

Barts Health is one of the largest NHS trusts in the country, and one of Britain’s leading healthcare providers.

The Barts Health group of NHS hospitals is entering an exciting new era on our improvement journey to becoming an outstanding organisation with a world-class clinical reputation. Having lifted ourselves out of special measures, we now have the impetus and breathing space to chart a fresh course in which we are continually striving to improve all our services for patients.

Our vision is to be a high-performing group of NHS hospitals, renowned for excellence and innovation, and providing safe and compassionate care to our patients in east London and beyond. That means being a provider of excellent patient safety, known for delivering consistently high standards of harm-free care and always caring for patients in the right place at the right time. It also means being an outstanding place to work, in which our WeCare values and behaviours are visible to all and guide us in how we work together.


Precision Medicine Information Governance Lead

Barts Health NHS Trust is one of Britain’s leading healthcare providers and one of the largest Trusts in the NHS with turnover of approximately £1.3 billion and 15,000 employees, serving a population of 2.5m in East London and beyond. Our hospitals offer a full portfolio of services and are home to some of Britain’s leading specialist centres including cancer, cardiac, trauma and emergency care. We also have one of the UK’s busiest children’s hospitals and internationally renowned surgical facilities. Our vision is to create a world-class health organisation with an international reputation for excellence in patient care, research and education.

Barts Life Sciences

Launched in 2018, Barts Life Sciences is a powerful partnership between Barts Health NHS Trust and Queen Mary University of London. It brings world-leading researchers, scientists, clinicians and industry together to collaborate and accelerate the latest healthcare innovations from bench to bedside.

The Barts Life Sciences hub in Whitechapel, East London is strategically located between Europe’s financial hub and London’s start-up community. It is also based within one of the most diverse communities in Europe, which has around 2.5 million people speaking more than 60 languages.

Barts Life Sciences supports the ambitions laid out in the NHS Long Term Plan to bring the benefits of medical advances, driven by research and innovation, to patients and the UK economy. Building on our existing strengths in basic science, epidemiology, genomics and translational medicine, we intend to focus on the development of AI, machine learning and medical devices. This will help us to tackle complex challenges in cancer, trauma and cardiovascular diseases, further supporting the realisation of the NHS Plan.

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Precision Medicine Programme

Barts Life Sciences has been awarded £5.7M from Barts Charity to establish a precision medicine programme to better utilise one of the largest datasets within the NHS to find new and personalised ways to treat patients.

The NHS generates vast quantities of data from patient interactions, treatment and therapy. This data is used primarily for direct patient care, to inform clinical decisions and to organise the delivery of care. Data is also used internally within NHS organisations to monitor population outcomes, improve service delivery efficiency and improve the quality of care. Data can also be used outside the health service, by third-party organisations – such as universities or commercial organisations, where data might be used for research, product and service development.

It is also expected that around eight million data points will be collected by Barts Health NHS Trust every day from across primary, secondary and community care once the Trust goes paperless later this year. The existing – and future data – will now be integrated and optimised for analysis with data driven technologies such as Artificial Intelligence (AI).

By offering an integrated data access service, Barts Life Sciences will be at the forefront of data-led innovation, developing its role as a key player in the life sciences economy and in turn, improve patient care and experience.

The programme will unleash the full research potential of NHS patient data while ensuring it is accessed responsibly and appropriately. A dedicated information governance and research management team will ensure that all projects using data access service will follow GDPR and other legal and ethical responsibilities, protecting patient and public rights to confidentiality, fairness and equity.

The Role

This is a 12 month fixed term opportunity. Working closely with the technical team developing the data core (Deputy CIO and Technical Architect), this post will be responsible for providing expert information governance advice to ensure that legal, ethical and regulatory requirements for data management and data access are met across the Trust and partners.

The ideal candidate will have extensive experience of working in the field of information governance including practical implementation of the Data Protection Act, the Freedom of Information Act and other information governance and security standards. They will be able to confidently communicate on complex technical subjects to a range of stakeholders, and implement policies and procedures in the context of uncertainty due to changing and developing legal landscape.

For further detail on the role responsibilities please see the job description.

To arrange an information discussion about this role please contact Sarah Palmer-Edwards,

More information and a link to apply can be found here: